404k in England have ME/CFS

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New research reveals 404,000 people in England have ME/CFS, a 62% jump from previous estimates of 250,000 cases.

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University of Edinburgh scientists analyzed NHS data from 62 million people to uncover this hidden health crisis affecting far more people than once thought.

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ME/CFS diagnosis rates show troubling patterns: white Britons are five times more likely to be diagnosed than ethnic minorities

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The condition peaks at age 50 for women and a decade later for men, with women six times more likely to develop it during middle age.

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Where you live matters too – Cornwall shows highest diagnosis rates while parts of London show the lowest, creating a "postcode lottery" for patients.

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Nearly 200 GP practices in deprived areas have zero ME/CFS patients on record, suggesting many sufferers remain undiagnosed.

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ME/CFS causes extreme fatigue, post-exertional malaise, pain, and brain fog with no diagnostic test or cure currently available.

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People struggle to get diagnosed with ME/CFS. Diagnosis validates their symptoms and enables recognition and support," says researcher Gemma Samms

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The findings should lead to better doctor training and accelerated research into diagnostic tests for this widely misunderstood condition.

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