23andMe Bankruptcy: Genetic Data of 15M Users at Risk Amid Leadership Turmoil

March 28, 2025
6 mins read
Representative Image. Me packaging. Photo Source: Ian Ruotsala (CC BY-NC-SA 2.0)
Representative Image. Me packaging. Photo Source: Ian Ruotsala (CC BY-NC-SA 2.0)

In a dramatic fall from grace, genetic testing company 23andMe filed for Chapter 11 bankruptcy protection on March 23, 2025, marking a stunning reversal for a firm once valued at $6 billion. The company that pioneered direct-to-consumer DNA testing now faces an uncertain future as it enters a court-supervised sale process amid mounting privacy concerns over its vast database of genetic information from more than 15 million customers.

Financial Collapse and Leadership Turmoil

23andMe’s market capitalization has plummeted to approximately $14 million, a mere fraction of its peak valuation. The company has struggled to generate recurring revenue from its one-time DNA testing kit purchases while facing increasing competition and declining consumer interest.

The bankruptcy filing follows significant leadership upheaval. CEO and co-founder Anne Wojcicki resigned on Friday to position herself as an independent bidder for the company. Joseph Selsavage, the company’s Chief Financial and Accounting Officer, has been appointed interim CEO.

This leadership change comes after all seven independent directors resigned in September 2024, citing disagreements with Wojcicki over the company’s strategic direction. These resignations came amid Wojcicki’s unsuccessful attempts to take the company private.

Co-Founder Criticism and Governance Issues

Linda Avey, who co-founded 23andMe in 2006 alongside Wojcicki and Paul Cusenza, publicly criticized the company’s trajectory since her departure in 2009.

“My time at the company was cut short in 2009, when my co-founder Anne convinced the board that she should run the company,” Avey wrote on social media platform X. “And I must be honest, I was frustrated with the direction the company took after that point.”

Avey pointed to governance issues as a key factor in the company’s downfall: “After my departure, she architected a majority vote for herself that eliminated board governance, even as it expanded over the following funding rounds. For better or worse, the buck stopped with her. It came as no surprise when the board resigned last year.”

She added, “Without continued consumer-focused product development, and without governance, 23andMe lost its way, and society missed a key opportunity in furthering the idea of personalized health.”


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Data Privacy Concerns Take Center Stage

The bankruptcy has raised serious concerns about the security and future use of customer genetic data, particularly following a major data breach in October 2023 that compromised the personal information of nearly 7 million users. That breach resulted in a $30 million settlement and multiple class-action lawsuits.

While 23andMe has assured customers that the Chapter 11 reorganization “does not change how we store, manage, or protect customer data” and that “any buyer of 23andMe will be required to comply with applicable law with respect to the treatment of customer data,” privacy experts remain concerned.

California Attorney General Rob Bonta has issued an urgent consumer alert advising 23andMe customers to request deletion of their data and destruction of their test samples under the provisions of the Genetic Information Privacy Act (GIPA) and the California Consumer Protection Act (CCPA).

Cybersecurity experts emphasize that genetic data presents unique risks compared to other personal information. Unlike compromised passwords that can be reset, genetic information is permanent and could potentially be misused if sold or transferred to new ownership.

Bankruptcy Process and Next Steps

The company has begun a court-supervised process to solicit qualified bids over a 45-day period. If approved by the court, this process could lead to an auction of the company’s assets, with its genetic database likely being the most valuable component.

A bankruptcy court judge has granted 23andMe permission to explore the sale of its customer data while slowing down the overall process by two weeks to allow creditors more time to provide input.

The company has secured a $35 million financial commitment to maintain operations during the sale process and has estimated its assets and liabilities to be between $100 million and $500 million.

Operational Cuts and Research Impact

As part of its restructuring efforts, 23andMe has reduced its workforce by approximately 40% and discontinued its therapeutics division. These measures were taken to cut costs amid the company’s broader financial struggles.

The potential sale of the company’s genetic database raises questions about the future of ongoing drug discovery and genetic research initiatives that rely on this information.

How Customers Can Protect Their Data

For concerned customers who wish to delete their genetic information from 23andMe, the California Attorney General has outlined the following steps:

  1. Log into your 23andMe account
  2. Go to the “Settings” section of your profile
  3. Scroll to the “23andMe Data” section at the bottom of the page
  4. Click “View” next to “23andMe Data”
  5. Download your data if you want a personal copy
  6. Scroll to the “Delete Data” section
  7. Click “Permanently Delete Data”
  8. Confirm your request via the email you’ll receive

Customers who have opted to have their saliva sample and DNA stored can change this preference from the account settings page under “Preferences.” Those who previously consented to research use of their genetic data can withdraw consent from the account settings page under “Research and Product Consents.”

https://whatsapp.com/channel/0029Vb2BWGn77qVMKpqBxg3D

Industry Implications and Regulatory Questions

The collapse of 23andMe highlights challenges faced by the direct-to-consumer genetic testing industry, including the difficulty of generating sustainable revenue from one-time purchases and growing consumer concerns about genetic privacy.

The situation underscores the fragmented nature of genetic privacy regulation in the United States. While some states have enacted laws giving consumers control over their genetic data, the absence of comprehensive federal privacy legislation leaves significant gaps in protection.

This high-profile bankruptcy may accelerate calls for stronger federal regulation of genetic data privacy and push companies in the sector to develop more sustainable business models that better balance innovation with consumer protection.

Frequently Asked Questions

What happened to 23andMe and why did they file for bankruptcy? +
23andMe filed for Chapter 11 bankruptcy protection on March 23, 2025, after experiencing a dramatic financial collapse. The company’s market value plummeted from a peak of $6 billion to approximately $14 million. The bankruptcy follows years of struggling to generate recurring revenue from one-time DNA testing kit purchases, increasing competition, declining consumer interest, and significant leadership turmoil including CEO Anne Wojcicki’s resignation and the departure of all seven independent directors in September 2024.
What happens to customer genetic data during the bankruptcy? +
While 23andMe has stated that the Chapter 11 reorganization “does not change how we store, manage, or protect customer data” and that any buyer would be required to comply with applicable laws, the company has begun a court-supervised process that could lead to an auction of its assets, with the genetic database likely being the most valuable component. A bankruptcy court judge has granted permission to explore the sale of customer data while slowing down the process to allow creditors more input. Privacy experts remain concerned about the future use and security of this sensitive genetic information.
Can customers delete their data from 23andMe? +
Yes, customers who are concerned about their genetic information can delete their data from 23andMe. California Attorney General Rob Bonta has issued an urgent consumer alert advising customers to request deletion of their data and destruction of test samples under applicable privacy laws. The process involves logging into your 23andMe account, navigating to settings, scrolling to the “23andMe Data” section, clicking “Permanently Delete Data,” and confirming your request via email. Customers can also withdraw consent for research use of their genetic data through account settings.
What led to 23andMe’s financial problems? +
Several factors contributed to 23andMe’s financial decline. The company struggled with a business model reliant on one-time purchases rather than recurring revenue. Co-founder Linda Avey publicly criticized governance issues, stating that after her departure in 2009, Anne Wojcicki “architected a majority vote for herself that eliminated board governance.” These leadership and governance problems, combined with increased competition, privacy concerns (including a major data breach in October 2023), and declining consumer interest in DNA testing, ultimately led to the company’s financial collapse.
What are the privacy risks associated with genetic data? +
Genetic data presents unique privacy risks compared to other personal information. Unlike compromised passwords that can be reset, genetic information is permanent and could potentially be misused if sold or transferred to new ownership. The October 2023 data breach at 23andMe, which compromised the personal information of nearly 7 million users, highlighted these concerns. The fragmented nature of genetic privacy regulation in the United States, with no comprehensive federal legislation, leaves significant gaps in protection, making genetic data particularly vulnerable during corporate transitions like bankruptcy.
What does this bankruptcy mean for the future of consumer genetic testing? +
The collapse of 23andMe highlights significant challenges faced by the direct-to-consumer genetic testing industry. These include the difficulty of creating sustainable revenue models from one-time purchases, growing consumer concerns about genetic privacy, and the need for stronger regulatory frameworks. This high-profile bankruptcy may accelerate calls for more comprehensive federal regulation of genetic data privacy and push companies in the sector to develop business models that better balance innovation with consumer protection. The industry may see shifts toward more secure data practices and alternative revenue streams beyond one-time testing kits.

Sunita Somvanshi

With over two decades of dedicated service in the state environmental ministry, this seasoned professional has cultivated a discerning perspective on the intricate interplay between environmental considerations and diverse industries. Sunita is armed with a keen eye for pivotal details, her extensive experience uniquely positions her to offer insightful commentary on topics ranging from business sustainability and global trade's environmental impact to fostering partnerships, optimizing freight and transport for ecological efficiency, and delving into the realms of thermal management, logistics, carbon credits, and energy transition. Through her writing, she not only imparts valuable knowledge but also provides a nuanced understanding of how businesses can harmonize with environmental imperatives, making her a crucial voice in the discourse on sustainable practices and the future of industry.

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